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# Meeting on Rare Disease Patient Engagement
- URL: https://www.fdaweb.com/meeting-on-rare-disease-patient-engagement/
- Published: 2023-11-20T12:00:00.000Z
- Updated: 2026-09-14T14:16:39.000Z
- Author: David McFarland
- Tags: FDA Policy/General, #legacy-id-D5155825

*Federal Register* notice: FDA is announcing a 12/14 public meeting entitled “Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement.” The workshop is intended to focus on how best to understand patients’ experiences living with a rare disease and how to incorporate those experiences, as well as patients’ priorities for treatment goals, throughout the drug development process. It will also address engaging patients, patient groups, and related experts when developing necessary evidence for rare disease drug approvals. To view the notice, click [here](https://www.govinfo.gov/content/pkg/FR-2023-11-20/pdf/2023-25500.pdf?ref=fdaweb.com).