Drugs

Rep. Gottheimer Introduces 5 Bipartisan Rare Disease Bills

David McFarland

— 1 min read
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Marking Rare Disease Week, Rep. Josh Gottheimer (D-NJ) has introduced five bipartisan bills to help find cures. A media release says the bills are:

  • Gwenn’s Law (in honor of Gottheimer’s mother, who died due to sarcoidosis) to increase the number of women in clinical trials for rare diseases and blood disorders;
  • Leo’s Law to extend exclusivity for rare disease clinical trials that were stalled during the Covid-19 pandemic;
  • a resolution recognizing the significance of Charcot-Marie Tooth Disease;
  • Cameron’s Law to fully restore the orphan drug tax credit that was halved in the 2017 tax law; and
  • launching the bipartisan Congressional Sarcoidosis Caucus to increase awareness of the disease, push for stronger federal investment in research, and collaborate with FDA to update outdated processes that delay progress for patients seeking effective treatment options.

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